Final up to date on April 2, 2023.
It’s been awhile, and although I do share tidbits extra regularly on social media and through my e-newsletter, I wished to do a full write up of what has been happening. I haven’t revealed a weblog submit since April, so this can be a lengthy overdue replace. It shares some thrilling skilled information, but in addition the private because it pertains to my well being.
This neighborhood has been an enormous a part of what has stored me afloat throughout the previous few, troublesome years. With my restricted bandwidth because of the ongoing spinal cerebrospinal (CSF) leak, I’ve needed to minimize out among the work I wish to do. The weblog was placed on hiatus first, as a result of updating on social media (primarily Instagram) is faster and fewer labour intensive.
However whereas I’ve not been placing out new posts right here, I’ve spent many hours updating the backend of the web site, and dealing on plenty of different issues that I wished to share. I’ve additionally seen specialists and realized extra about my physique, sufficient that that data sheds a really completely different mild on the a few years of continual ache I endured previous to my CSF leak.
It has taken time to course of the thread that now connects dots I by no means thought to attach, and I wished to maintain my neighborhood up to date.
Just a few updates about how I’m feeling, these linked dots, and the place I’m dwelling.
Transferring to Gatineau, Quebec and Dwelling Semi-Independently
Since Might, I’ve been dwelling in Gatineau, throughout the river from Ottawa. My brother lives in Ottawa, and my plan is to ultimately transfer there as properly. For now, although, Gatineau has been a beautiful center floor. I obtained to spend a summer time wandering all the way down to the water, seeing my household, and studying the best way to stay principally alone, with a leak.
My brother and his associate come over as soon as every week to assist with issues I can’t do, like getting groceries for me, and doing my laundry and my vacuuming. I’m fortunate that I’ve them to select up the slack that my leak steals away, and I’ll by no means complain about getting extra time with individuals I like a lot.
At first, adjusting to the condo felt actually deflating. There have been many issues that I couldn’t attain, or use. The mattress was too low and really painful to get out and in of. The freezer was a drawer below the fridge, so I couldn’t open it with out making my CSF leak worse. The dishes and pots had been too heavy for me to clean myself, or use comfortably. The record went on.
These are fixable issues, after all. I obtained a mattress pad, a tiny freezer, and new light-weight dishes and a small pot to make use of, thanks in no small half to the Amazon reward playing cards you bought me for my birthday.
However the preliminary weeks right here felt actually deflating. As people we’re so good at adjusting. Generally too good, and we overlook the place we actually are. The attitude I misplaced was that I’m truly extra disabled than I remembered, one thing that hit me onerous once I moved into this condo.
Like the rest, adjusting to this new life has its ups and downs, and ultimately I obtained previous the frustration and began strategizing methods to repair the issues I used to be going through. I additionally obtained a kitchen rolling cart, plenty of canvas storage bins since the whole lot has to take a seat on counters to be reachable for me, and some different issues that make the place extra comfy.
I used to be by no means certain if I’d even have the ability to stay independently once more. So whereas there’s a lot I want I may do, I’m very grateful that I’m able to have extra autonomy after years of being so depending on others for each little factor.
Connecting the dots
As I discussed, my spinal CSF leak remains to be lively. However my physique both appears to have produced extra CSF, giving me some extra “uptime”, or it has gotten barely higher. Since my leak, I’ve had immune and different points which have cropped up or worsened. I used to be ready, with the assistance of labs and specialists, to lastly join the dots. You possibly can learn extra about that course of on my private web site as follows:
Mast cells are “sentinels” of the immune system, a sort of white blood cell that helps management the immune processes within the physique. They’re known as resident immune cells as a result of they reside in tissues and never in our bloodstream. And so they reside in tissues all around the physique, from the connective tissue, to the endothelial cells, to the epithelial cells, and even within the mind.
Among the initiatives I’ve been engaged on within the months since I final revealed.
Sharing Assets about Ache on Patreon
I created the Patreon as a solution to settle for help from this neighborhood, however it’s slowly morphing into a spot the place I additionally share assets for people who find themselves struggling for continual ache, or those that know somebody who’s in ache.
The unhappy actuality is that the majority of us are in a kind of two classes.
Through the years, I’ve acquired many questions on how I’ve coped with my very own ache ranges. Now, I’m getting questions on how somebody can help an individual in ache. So the Patreon’s AMAs are a spot the place I reply these questions, and add extra assets.
The posts I’ve shared there additionally go into how I made the condo I’m in accessible, and what adjustments to the setup allowed me to deal with dwelling alone with the disabilities I now have. Most not too long ago, as generally individuals really feel dangerous about asking for assist or accepting assist, somebody requested me to speak about the best way to speak to somebody in ache to assist them get help if they’re cussed. (I’ll be answering this within the subsequent AMA).
From suggestions to this point, these have been actually helpful. I sit up for sharing extra.
Additionally, I’m now a Patreon ambassador! I obtained an electronic mail from them in the summertime, asking if I’d be concerned with making use of for an ambassadorship programme they had been constructing. I’m one in all a small group of creators (out of their 200,000 customers) who had been accepted.
It’s nonetheless fairly new, and to this point it’s been pretty to fulfill some actually attention-grabbing, tremendous inventive individuals. The ambassadorship is unpaid, however options workshop—I’ve attended just a few to this point—and rewarding breakout rooms with others within the programme to share methods and issues/successes. Different perks embody 1:1 product help, social media options, enjoyable swag for my Patreon neighborhood, in addition to paid alternatives to take part in issues like product focus teams or inventive collaborations with their staff.
I don’t know the way they discovered me, and it’s intimidating as a result of most of the different creators have upwards of 2000 Patrons, however I’m wanting ahead to collaborating! Provided that it was all of you who requested me to start out a Patreon, I’ve this neighborhood to thank!
For those who’re concerned with becoming a member of the Patreon neighborhood, you are able to do so right here.
A One-Time Assist Possibility
Once I launched my Patreon, I acquired messages from readers who wished to contribute and/or help me in my work through a one-time cost. I didn’t have that in place, however do now.
The Curious About All the things E-newsletter
Regardless of all this pleasure of transferring to a brand new place, I’ve managed to maintain my e-newsletter working. I’ve been taking part in round with format (and emojis, I can’t assist myself), and primarily spotlighting just a few vital reads every month, together with extra enjoyable photo-essays and quirky items I discover. I generally embody private updates, however the focus of the e-newsletter is on proficient and/or vital writing price studying.
Whereas it’s on Substack, and plenty of writers have moved to a paid e-newsletter mannequin, I don’t plan to take action. The Patreon is the first help system for my revenue, alongside celiac playing cards and the meals maps store. The e-newsletter I plan to maintain free.
Even when this web site has been extra dormant than I would really like, I really feel joyful that CAE has gone out each month for the final 11 months.
You possibly can enroll beneath in case you are concerned with receiving it.
A Huge Piece about Psychological Mindset (Coming Quickly)
I had a submit known as How one can Get By Horrible Instances that I had on this web site, however I’ve briefly taken it down as I deliberate to publish it individually. I’ve been engaged on this piece over the past whereas and it’s nonetheless in modifying, however I’m excited to share it on the new JE web site.
Redesign of Authorized Nomads:
You will have seen that the positioning is slightly completely different!
Arthur the raven, my mascot, could be very distinguished. Ravens are such extremely curious birds, and I selected one as my web site’s throughline so as to spotlight that I nonetheless am too, albeit differently to earlier than.
And, a brand new slogan: interested in the whole lot. I’m now not telling tales by way of meals, in order that slogan needed to go. The brand new emblem displays a divergence from my prior lifetime of journey and meals, but in addition the reality of who I all the time was: somebody who wished to be taught as a lot as doable.
I began to really feel actually dissonant once I seemed on the ‘previous’ Authorized Nomads, so this displays extra of the place I’m in life whereas nonetheless sustaining the same construction.
I’ve added well being and continual ache to the primary classes on the house web page, too, since they’re now an even bigger a part of what I write about.
I had actually particular concepts of what I wished, in order with the final redesign to the positioning I offered the belongings (new logos, Arthur the Raven, and so on.) to an online developer as a substitute of hiring somebody who did branding in addition to improvement. The belongings had been inked by my artist-in-Authorized-Nomadsness Ella F. Sanders. The redesign was accomplished by an online developer who works for fellow journey blogger Mike’s internet improvement firm. Whereas her work was paid, he donated his personal time professional bono to assist supervise the venture.
Put up Overhauls and Web page Updates:
My morning routine is to rise up, make espresso, after which do some work on the web site till I must take a break.
This has allowed me to slowly replace pages and posts over time, and preserve Authorized Nomads extra present.
- The gluten free guides are up to date for 2021. They’re right here.
- The gluten free New York Metropolis information has additionally been up to date to replicate restaurant closures and a few newcomers to the scene which are 100% gluten free.
- I added a historical past of Belize part, and a “the place is Belize positioned” part, as a result of imagine it or not that’s the commonest search time period for this submit. It’s additionally obtained COVID-19 guidelines for visiting, when you had been selecting to threat going now.
- I up to date the Vietnamese Egg Espresso Recipe with locations to get it in North America, and new items and movies in regards to the candy deal with.
- I up to date my piece on sleep points and jet lag with details about the best way to sleep higher, and new research about chronomedicine and Covid-19.
- I up to date my Vipassana Meditation retreat expertise with some new information in regards to the risks of these sorts of retreats, and the way in some instances they’ll result in a psychological break.
- The Various Careers for Legal professionals web page has been up to date to incorporate pandemic data, the rise of consultants within the authorized area, and a extra clear breakdown of the best way to go about shifting careers once you really feel overwhelmed desirous about how to take action.
- In November 2021, I up to date my historical past of chili peppers submit to incorporate the 2021 Nobel Prize profitable analysis on capsaicin, somatosensory receptors, and ache.
RSS-to-E-mail Adjustments: Feedburner is not any extra. RIP Feedburner.
Google has been threatening to chop RSS-to-email choices for Feedburner for a few years. The service was deprecated years in the past, and this July they lastly mentioned that they had been accomplished supporting that possibility. So I had to determine what service to make use of so as to get these individuals their emails. (Since I barely write right here, I had plenty of time to do that!)
For these of you who opted to obtain Authorized Nomads updates through electronic mail, new posts will likely be despatched by an organization known as ConvertKit. I used to be planning on switching to them proper earlier than my CSF leak occurred, so it solely took me an additional few years. My pal Nathan began the corporate and is a very pretty human being; I’d a lot fairly give my cash to proficient buddies than strangers!
For those who’re not getting Authorized Nomads through electronic mail, you possibly can enroll through the shape beneath. That is only for LN posts (about each six months, when it comes to publishing schedule as of late!). My month-to-month e-newsletter above is separate.
For those who had been already subscribed to get Authorized Nomads posts by electronic mail, you do not want to do something. I wished to clarify why the emails look completely different, and let everybody know they’ll additionally enroll that approach if they like.
That’s it for now!
Whereas the ache I’m in by no means goes away, these initiatives and my newfound autonomy have helped make these previous couple of months among the greatest in years. I will not be cell or touring the world anymore, however I imagine that I’m capable of assist extra individuals than ever earlier than.
Whether or not it’s serving to navigate powerful occasions, understanding ache and loss, or simply giving extra context to the diseases of family members, this work feels helpful.
And feeling helpful goes a good distance towards life satisfaction for me.
Thanks for permitting me to share this journey with you.
Till subsequent time,